Estamos à porta do 5º mês do desafio literário Ler a Diferença, que pretende dinamizar a leitura de obras mais inclusivas que contribuam para a representatividade de comunidades marginalizadas. Em agosto, o tema será “Pessoas com Deficiência” e, como habitual, fiz alguma pesquisa e reuni alguns títulos que poderão incluir no desafio.
Este é um tema sobre o qual sei muito pouco porque, no conforto do meu privilégio, nunca me tinha dado ao trabalho de me informar sobre este espectro da inclusividade . O Ler a Diferença e a responsabilidade da posição que ocupo no desafio impulsionaram-me a dedicar este último mês a pesquisar e a consultar fontes que me ajudassem a assumir uma postura de maior respeito, sensibilidade e cooperação benéfica. Ainda assim, continuo sem ter propriedade e conhecimento suficientes para dar a cara por esta causa, por isso, quero frisar que, por muito que tenha pesquisado, continuo a estar sujeita a cometer erros e que, no caso de reproduzir algum discurso ofensivo ou capacitista, fruto da minha ignorância, estarei sempre aberta a ser advertida e corrigida.
Tentei que os livros deste mês contemplassem os diversos tipos de deficiência e desafios que deles derivam. Acima de tudo, que fossem relatos humanizados e dignificantes da comunidade de pessoas com deficiência, uma das mais marginalizadas e invisibilizadas na sociedade. Espero que seja um mês de aprendizagem para todos os que participem (eu incluída) e que nos ajude a ter um papel mais ativo e informado nesta luta.
A sessão zoom para debatermos este tema está marcada para dia 4 de setembro às 21h e o formulário de inscrição já está aberto. Poderão acessá-lo através deste link.
1. “Storm and Fury” de Jennifer L. Armentrout
«Eighteen-year-old Trinity Marrow may be going blind, but she can see and communicate with ghosts and spirits. Her unique gift is part of a secret so dangerous that she’s been in hiding for years in an isolated compound fiercely guarded by Wardens—gargoyle shape-shifters who protect humankind from demons. If the demons discover the truth about Trinity, they’ll devour her, flesh and bone, to enhance their own powers.
When Wardens from another clan arrive with disturbing reports that something out there is killing both demons and Wardens, Trinity’s safe world implodes. Not the least because one of the outsiders is the most annoying and fascinating person she’s ever met. Zayne has secrets of his own that will upend her world yet again—but working together becomes imperative once demons breach the compound and Trinity’s secret comes to light. To save her family and maybe the world, she’ll have to put her trust in Zayne. But all bets are off as a supernatural war is unleashed…»
2. “Six of Crows” de Leigh Bardugo
«Ketterdam: a bustling hub of international trade where anything can be had for the right price—and no one knows that better than criminal prodigy Kaz Brekker. Kaz is offered a chance at a deadly heist that could make him rich beyond his wildest dreams. But he can’t pull it off alone. . . .
A convict with a thirst for revenge
A sharpshooter who can’t walk away from a wager
A runaway with a privileged past
A spy known as the Wraith
A Heartrender using her magic to survive the slums
A thief with a gift for unlikely escapes
Kaz’s crew is the only thing that might stand between the world and destruction—if they don’t kill each other first.»
3. “A Curse So Dark and Lonely” de Brigid Kemmerer
«Fall in love, break the curse.
Cursed by a powerful enchantress to repeat the autumn of his eighteenth year, Prince Rhen, the heir of Emberfall, thought he could be saved easily if a girl fell for him. But that was before he turned into a vicious beast hell-bent on destruction. Before he destroyed his castle, his family, and every last shred of hope.
Nothing has ever been easy for Harper. With her father long gone, her mother dying, and her brother constantly underestimating her because of her cerebral palsy, Harper learned to be tough enough to survive. When she tries to save a stranger on the streets of Washington, DC, she’s pulled into a magical world.
Break the curse, save the kingdom.
Harper doesn’t know where she is or what to believe. A prince? A curse? A monster? As she spends time with Rhen in this enchanted land, she begins to understand what’s at stake. And as Rhen realizes Harper is not just another girl to charm, his hope comes flooding back. But powerful forces are standing against Emberfall . . . and it will take more than a broken curse to save Harper, Rhen, and his people from utter ruin.»
1. “Wonder Encantador” de R. J. Palacio
«August nasceu com uma deficiência genética que faz com que o seu rosto seja completamente deformado. Quando nasceu os médicos não tinham esperança de que sobrevivesse, mas sobreviveu. Vários anos e muitas cirurgias depois, August vai, aos 10 anos, enfrentar o maior desfio da sua vida. A escola.
Contado a várias vozes, é uma história emotiva das dificuldades que tem de superar uma criança com uma terrível deformação e um relato do milagre que é a vida.»
Links de Compra:
2. “The Gentleman’s Guide to Vice and Virtue” de Mackenzie Lee
«Henry “Monty” Montague was born and bred to be a gentleman, but he was never one to be tamed. The finest boarding schools in England and the constant disapproval of his father haven’t been able to curb any of his roguish passions—not for gambling halls, late nights spent with a bottle of spirits, or waking up in the arms of women or men.
But as Monty embarks on his Grand Tour of Europe, his quest for a life filled with pleasure and vice is in danger of coming to an end. Not only does his father expect him to take over the family’s estate upon his return, but Monty is also nursing an impossible crush on his best friend and traveling companion, Percy.
Still it isn’t in Monty’s nature to give up. Even with his younger sister, Felicity, in tow, he vows to make this yearlong escapade one last hedonistic hurrah and flirt with Percy from Paris to Rome. But when one of Monty’s reckless decisions turns their trip abroad into a harrowing manhunt that spans across Europe, it calls into question everything he knows, including his relationship with the boy he adores.»
3. “How Lucky” de Will Leitch
«For readers of The Curious Incident of the Dog in the Night-Time and Nothing to See Here, a first novel as suspenseful and funny as it is moving, the unforgettable story of a fiercely resilient young man grappling with a physical disability, and his efforts to solve a mystery unfolding right outside his door.
Daniel leads a rich life in the university town of Athens, Georgia. He’s got a couple close friends, a steady paycheck working for a regional airline, and of course, for a few glorious days each Fall, college football tailgates. He considers himself to be a mostly lucky guy—despite the fact that he’s suffered from a debilitating disease since he was a small child, one that has left him unable to speak or to move without a wheelchair.
Largely confined to his home, Daniel spends the hours he’s not online communicating with irate air travelers observing his neighborhood from his front porch. One young woman passes by so frequently that spotting her out the window has almost become part of his daily routine. Until the day he’s almost sure he sees her being kidnapped.»
4. “The Running Dream” de Wandelin Van Draanen
«An award-winning and inspiring novel. When Jessica’s dreams are shattered, she puts herself back together—and learns to dream bigger than ever before.
Jessica thinks her life is over when she loses a leg in a car accident. She’s not comforted by the news that she’ll be able to walk with the help of a prosthetic leg. Who cares about walking when you live to run?
As she struggles to cope with crutches and a first cyborg-like prosthetic, Jessica feels oddly both in the spotlight and invisible. People who don’t know what to say, act like she’s not there. Which she could handle better if she weren’t now keenly aware that she’d done the same thing herself to a girl with CP named Rosa. A girl who is going to tutor her through all the math she’s missed. A girl who sees right into the heart of her.
With the support of family, friends, a coach, and her track teammates, Jessica may actually be able to run again. But that’s not enough for her now. She doesn’t just want to cross finish lines herself—she wants to take Rosa with her.»
5. “A List of Cages” de Robin Roe
«When Adam Blake lands the best elective ever in his senior year, serving as an aide to the school psychologist, he thinks he’s got it made. Sure, it means a lot of sitting around, which isn’t easy for a guy with ADHD, but he can’t complain, since he gets to spend the period texting all his friends. Then the doctor asks him to track down the troubled freshman who keeps dodging her, and Adam discovers that the boy is Julian—the foster brother he hasn’t seen in five years.
Adam is ecstatic to be reunited. At first, Julian seems like the boy he once knew. He’s still kindhearted. He still writes stories and loves picture books meant for little kids. But as they spend more time together, Adam realizes that Julian is keeping secrets, like where he hides during the middle of the day, and what’s really going on inside his house. Adam is determined to help him, but his involvement could cost both boys their lives…»
6. “The Memory Book” de Lara Avery
«They tell me that my memory will never be the same, that I’ll start forgetting things. At first just a little, and then a lot. So I’m writing to remember.
Sammie was always a girl with a plan: graduate at the top of her class and get out of her small town as soon as humanly possible. Nothing will stand in her way–not even a rare genetic disorder the doctors say will slowly start to steal her memories and then her health. What she needs is a new plan.
So the Memory Book is born: Sammie’s notes to her future self, a document of moments great and small. It’s where she’ll record every perfect detail of her first date with longtime crush, Stuart–a brilliant young writer who is home for the summer. And where she’ll admit how much she’s missed her childhood best friend, Cooper, and even take some of the blame for the fight that ended their friendship.
Through a mix of heartfelt journal entries, mementos, and guest posts from friends and family, readers will fall in love with Sammie, a brave and remarkable girl who learns to live and love life fully, even though it’s not the life she planned.»
7. “Insignificant Events in the Life of a Cactus” de Dusti Bowling
«Aven Green loves to tell people that she lost her arms in an alligator wrestling match, or a wildfire in Tanzania, but the truth is she was born without them. And when her parents take a job running Stagecoach Pass, a rundown western theme park in Arizona, Aven moves with them across the country knowing that she’ll have to answer the question over and over again.
Her new life takes an unexpected turn when she bonds with Connor, a classmate who also feels isolated because of his own disability, and they discover a room at Stagecoach Pass that holds bigger secrets than Aven ever could have imagined. It’s hard to solve a mystery, help a friend, and face your worst fears. But Aven’s about to discover she can do it all . . . even without arms.»
8. “She Is Not Invisible” de Marcus Sedgwick
«The feeling that coincidences give us tells us they mean something… But what? What do they mean?
LAURETH PEAK’S father has taught her to look for recurring events, patterns, and numbers – a skill at which she’s remarkably talented. When he goes missing while researching coincidence for a new book, Laureth and her younger brother fly from London to New York and must unravel a series of cryptic messages to find him. The complication: Laureth is blind. Reliant on her other senses and on her brother to survive, Laureth finds that rescuing her father will take all her skill at spotting the extraordinary, and sometimes dangerous, connections in a world full of darkness.»
1. “Love From A to Z” de S.K. Ali
«An unforgettable romance following two Muslim teens who meet during a spring break trip.
Zayneb’s teacher, who won’t stop reminding the class how “bad” Muslims are. Meet Zayneb, the only Muslim in class, she isn’t bad. She’s angry.
When she gets suspended for confronting her teacher and he begins investigating her activist friends, Zayneb heads to her aunt’s house in Doha, Qatar, for an early start to spring break.
Fuelled by the guilt of getting her friends in trouble, she resolves to try out a newer, “nicer” version of herself in a place where no one knows her.
Then her path crosses with Adam’s.
Since he got diagnosed with multiple sclerosis in November, Adam’s stopped going to classes, intent instead, on perfecting the making of things. Intent on keeping the memory of his mum alive for his little sister. Adam’s also intent on keeping his diagnosis a secret from his grieving father.
Alone, Adam and Zayneb are playing roles for others, keeping their real thoughts locked away in their journals…until they meet.»
2. “The Silence Between Us” de Alison Gervais
«Deaf teen Maya moves across the country and must attend a hearing school for the first time. As if that wasn’t hard enough, she also has to adjust to the hearing culture, which she finds frustrating—and also surprising when some classmates, including Beau Watson, take time to learn ASL. As Maya looks past graduation and focuses on her future dreams, nothing, not even an unexpected romance, will derail her pursuits. But when people in her life—deaf and hearing alike—ask her to question parts of her deaf identity, Maya stands proudly, never giving in to the idea that her deafness is a disadvantage.»
3. “Only When It’s Us” de Chloe Liese
«Ever since she sat next to me in class and gave me death eyes, Willa Sutter’s been on my shit list. Why she hates me, I don’t know. What I do know is that Willa is the kind of chaos I don’t need in my tidy life. She’s the next generation of women’s soccer. Wild hair, wilder eyes. Bee-stung lips that should be illegal. And a temper that makes the devil seem friendly.
She’s a thorn in my side, a menacing, cantankerous, pain-in-the-ass who’s turned our Business Mathematics course into a goddamn gladiator arena. I’ll leave this war zone unscathed, coming out on top…And if I have my way with that crazy-haired, ball-busting hellion, that will be in more than one sense of the word.
Rather than give me the lecture notes I missed like every other instructor I’ve had, my asshole professor tells me to get them from the silent, surly flannel-wearing mountain man sitting next to me in class. Well, I tried. And what did I get from Ryder Bergman? Ignored. What a complete lumbersexual neanderthal. Mangy beard and mangier hair. Frayed ball cap that hides his eyes. And a stubborn refusal to acknowledge my existence.
I’ve battled men before, but with Ryder, it’s war. I’ll get those notes and crack that Sasquatch nut if it’s the last thing I do, then I’ll have him at my mercy. Victory will have never tasted so sweet.
Only When It’s Us is a frenemies-to-lovers, college sports romance about a women’s soccer star and her surly lumberjack lookalike classmate, complete with a matchmaking professor, juvenile pranks, and a smoking slow burn. This standalone is the first in a series of new novels about a Swedish-American family of five brothers, two sisters, and their wild adventures as they each find happily ever after.»
4. “A Quiet Kind of Thunder” de Sara Barnard
«Steffi doesn’t talk, but she has so much to say.
Rhys can’t hear, but he can listen.
Their love isn’t a lightning strike, it’s the rumbling roll of thunder.
Steffi has been a selective mute for most of her life – she’s been silent for so long that she feels completely invisible. But Rhys, the new boy at school, sees her. He’s deaf, and her knowledge of basic sign language means that she’s assigned to look after him. To Rhys, it doesn’t matter that Steffi doesn’t talk, and as they find ways to communicate, Steffi finds that she does have a voice, and that she’s falling in love with the one person who makes her feel brave enough to use it.
From the bestselling author of Beautiful Broken Things comes a love story about the times when a whisper is as good as a shout.»
5. “The Year We Fell Down” de Sabrina Bowen
«The sport she loves is out of reach. The boy she loves has someone else. What now?
She expected to start Harkness College as a varsity ice hockey player. But a serious accident means that Corey Callahan will start school in a wheelchair instead.
Across the hall, in the other handicapped-accessible dorm room, lives the too-delicious-to-be real Adam Hartley, another would-be hockey star with his leg broken in two places. He’s way out of Corey’s league.
Also, he’s taken.
Nevertheless, an unlikely alliance blooms between Corey and Hartley in the “gimp ghetto” of McHerrin Hall. Over tequila, perilously balanced dining hall trays, and video games, the two cope with disappointments that nobody else understands.
They’re just friends, of course, until one night when things fall apart. Or fall together. All Corey knows is that she’s falling. Hard.
But will Hartley set aside his trophy girl to love someone as broken as Corey? If he won’t, she will need to find the courage to make a life for herself at Harkness — one which does not revolve around the sport she can no longer play, or the brown-eyed boy who’s afraid to love her back.»
6. “Not If I See You First” de Eric Lindstrom
Don’t deceive me. Ever. Especially using my blindness. Especially in public.
Don’t help me unless I ask. Otherwise you’re just getting in my way or bothering me.
Don’t be weird. Seriously, other than having my eyes closed all the time, I’m just like you only smarter.
Parker Grant doesn’t need 20/20 vision to see right through you. That’s why she created the Rules: Don’t treat her any differently just because she’s blind, and never take advantage. There will be no second chances. Just ask Scott Kilpatrick, the boy who broke her heart.
When Scott suddenly reappears in her life after being gone for years, Parker knows there’s only one way to react – shun him so hard it hurts. She has enough on her mind already, like trying out for the track team (that’s right, her eyes don’t work but her legs still do), doling out tough-love advice to her painfully naive classmates, and giving herself gold stars for every day she hasn’t cried since her dad’s death three months ago. But avoiding her past quickly proves impossible, and the more Parker learns about what really happened – both with Scott, and her dad – the more she starts to question if things are always as they seem. Maybe, just maybe, some Rules are meant to be broken.
Combining a fiercely engaging voice with true heart, debut author Eric Lindstrom’s Not If I See You First illuminates those blind spots that we all have in life, whether visually impaired or not.»
7. “Pages I Never Wrote” de Marco Donati
«A candid, relatable Queer Coming-of-Age YA Novel featuring an LGBT University Romance and themes of disability, diversity, creativity, self-discovery and academic achievement.
“Why would he want to date me? I can’t even hold a pen.”
Luke has good friends, a passion for books, and dyspraxia, a disorder that, ironically, makes him unable to write. He also has a hatred for anyone who tries to help him. Yet when he fails his first term at university due to his learning difficulties, he’s forced to get support.
That’s how Nate, an excitable last-year student, becomes his self-proclaimed personal tutor and starts writing down essays for him, as a distraction from his own quarter-life crisis.
But Luke’s writing ambitions are not just academic. He dreams of penning a novel, although that’s never been a real possibility. Until now.
Will the two boys manage to write a successful love story together?
Find out in this coming-of-age novel dedicated to all late bloomers.»
8. “Sick Kids in Love” de Hannah Moskowitz
–for the other person.
She’s got issues. She’s got secrets. She’s got rheumatoid arthritis.
But then she meets another sick kid.
He’s got a chronic illness Isabel’s never heard of, something she can’t even pronounce. He understands what it means to be sick. He understands her more than her healthy friends. He understands her more than her own father who’s a doctor.
He’s gorgeous, fun, and foul-mouthed. And totally into her.
Isabel has one rule: no dating.
It’s never felt better–
–to consider breaking that rule for him.»
1. “Ser Deficiente é Ser Capaz” de Rita Saraiva
«Da leitura deste livro ficou-me a forte convicção de que do deficiente não há que ter pena mas tão somente de dedicar-lhe toda a admiração de que é merecedor. É ainda forte e clara a mensagem da Rita ao longo das suas páginas: o irrefutável dever de todo o ser humano de conviver com a deficiência qualquer que ela seja, de um modo simples sem barreiras psicológicas de qualquer espécie.»
Neste livro encontra o testemunho de uma pessoa que apesar da sua deficiência motora, mostra como todos nós conseguimos ultrapassar obstáculos e superar as dificuldades, bastando para isso querer e ser persistente.
Em tempos de crise como os actuais, quando julgamos que já não há mais soluções, a Rita Saraiva dá-nos uma lição de vida de como por vezes nem nos apercebemos de que temos um leque de soluções à nossa frente e tantos caminhos para percorrer. Temos de aprender a superar-nos cada dia que passa.»
Links de Compra:
2. “Deficiência e Emancipação Social” de Fernando Fontes e Bruno Sena Martins
«Deficiência e Emancipação Social: Para uma crise da normalidade procura articular as discussões contemporâneas sobre a relação entre os estudos e as políticas da deficiência, o momento de crise do Estado Social na Europa e uma análise crítica da realidade das pessoas com deficiência em Portugal. Assim, convocamos para o presente volume, por um lado, as contribuições internacionais de Alison Sheldon (Reino Unido), Colin Barnes (Reino Unido), Lennard Davis (Estados Unidos da América) e de Luiza Teles Mascarenhas e Marcia Moraes (Brasil). Por outro lado, concitamos as reflexões desenvolvidas no contexto da academia portuguesa por Aleksandra Berg, Bruno Sena Martins, Fernando Fontes, Pedro Hespanha e Sílvia Portugal.
Esta obra procura contribuir para a resposta a algumas das questões que enformam atualmente o campo dos “Estudos da Deficiência”. Trata-se, pois, de articular conhecimentos e experiências que assumam o compromisso político de recusa da injustiça social. A subjugação produzida em nome da deficiência cria sujeitos e vozes que, ora chamando a si a luta contra os edifícios epistemológicos da modernidade, ora constituindo a insurgência face aos fracassos da sociedade inclusiva, podem fomentar o desenvolvimento de uma imaginação crítica sobre o fim da normalidade.»
Links de Compra:
3. “Pessoas com Deficiência em Portugal” de Fernando Fontes
«A deficiência pode ser perspetivada de formas diversas, cada uma delas com potenciais de emancipação distintos para as pessoas com deficiência. O presente ensaio pretende abrir uma reflexão sobre esta realidade, de forma a contribuir para um questionamento cultural e sociopolítico dos fenómenos de menorização, opressão, pobreza e exclusão social vivenciados pelas pessoas com deficiência na sociedade portuguesa e para a construção de novos caminhos emancipatórios.»
Links de Compra:
4. “Disfigured: On Fairy Tales, Disability, and Making Space” de Amanda Leduc
«In fairy tales, happy endings are the norm—as long as you’re beautiful and walk on two legs. After all, the ogre never gets the princess. And since fairy tales are the foundational myths of our culture, how can a girl with a disability ever think she’ll have a happy ending?
By examining the ways that fairy tales have shaped our expectations of disability, Disfigured will point the way toward a new world where disability is no longer a punishment or impediment but operates, instead, as a way of centering a protagonist and helping them to cement their own place in a story, and from there, the world. Through the book, Leduc ruminates on the connections we make between fairy tale archetypes—the beautiful princess, the glass slipper, the maiden with long hair lost in the tower—and tries to make sense of them through a twenty-first-century disablist lens. From examinations of disability in tales from the Brothers Grimm and Hans Christian Andersen through to modern interpretations ranging from Disney to Angela Carter, and the fight for disabled representation in today’s media, Leduc connects the fight for disability justice to the growth of modern, magical stories, and argues for increased awareness and acceptance of that which is other—helping us to see and celebrate the magic inherent in different bodies.»
5. “Rolling Warrior: The Incredible, Sometimes Awkward, True Story of a Rebel Girl” de Judith Heumann e Kristen Joiner
«As featured in the Oscar-nominated documentary Crip Camp, and for readers of I Am Malala, one of the most influential disability rights activists in US history tells her story of fighting to belong.
“If I didn’t fight, who would?”
Judy Heumann was only 5 years old when she was first denied her right to attend school. Paralyzed from polio and raised by her Holocaust-surviving parents in New York City, Judy had a drive for equality that was instilled early in life.
In this young readers’ edition of her acclaimed memoir, Being Heumann, Judy shares her journey of battling for equal access in an unequal world–from fighting to attend grade school after being described as a “fire hazard” because of her wheelchair, to suing the New York City school system for denying her a teacher’s license because of her disability. Judy went on to lead 150 disabled people in the longest sit-in protest in US history at the San Francisco Federal Building. Cut off from the outside world, the group slept on office floors, faced down bomb threats, and risked their lives to win the world’s attention and the first civil rights legislation for disabled people.
Judy’s bravery, persistence, and signature rebellious streak will speak to every person fighting to belong and fighting for social justice.»
6. “Continuum” de Chella Man
«Pocket Change Collective was born out of a need for space. Space to think. Space to connect. Space to be yourself. And this is your invitation to join us.
In Continuum, fine artist, activist, and Titans actor Chella Man uses his own experiences as a deaf, transgender, genderqueer, Jewish person of color to talk about cultivating self-acceptance and acting as one’s own representation.
Pocket Change Collective is a series of small books with big ideas from today’s leading activists and artists.
What constructs in your life must you unlearn to support inclusivity and respect for all? This is a question that artist, actor, and activist Chella Man wrestles with in this powerful and honest essay. A story of coping and resilience, Chella journeys through his experiences as a deaf, transgender, genderqueer, Jewish person of color, and shows us that identity lies on a continuum — a beautiful, messy, and ever-evolving road of exploration.»
7. “Disability Visibility: First-Person Stories from the Twenty-first Century” de Alice Wong
«One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.»